Friday, August 19, 2011

A Big Question Mark

Today I am forcing myself to update our blog. I am in a space where I don't want to talk about it and I always want to talk about everything. This means I am not in so good a place.

Grace is out of her cast. Thankfully we are able to bath her and change her diaper and she loves life outside of the cast. Also, thankfully Grace's left hip (the one that was the worst to start with) is healed. The hip looks great and should not have any additional issues.

However, Grace's right hip is not healed. We are devastated. This week we met with Grace's surgeon and the hip is not set as well as she would like. Apparently there is something in the joint, maybe tissue, maybe something else. No one really seems to know what the specific issue with her hip is, but they do know it is not like it should be. This means Grace will spend 8 weeks full-time in a brace. Thankfully after a week she has adjusted to the brace and seems comfortable. After the 8 weeks we will see if she has grown and her hip has corrected itself. If not, we may be looking at an open reduction which is a much more complex surgery. Also, this means she would likely spend 6 to 12 weeks back in a spica cast.

To say that I am heartbroken is an understatement. But, the reality is that this is not about me. It is about Grace. Grace is a very special child. She has a sweetness about her that I have never possessed. She is gentle and patient and tough. She is an amazing person. I can see that already. I worry however that putting her through this challenge with her hips may change that sweet innocence. I worry that experiencing vast physical pain due to additional surgeries will destroy her gentle spirit. I do not want Grace's childhood defined by pain, casts, and physical limitations.

Right now we just wait. We wait for 6 more weeks of brace time. I will keep you updated on our sweet girl's progress. Please continue to pray for her healing and that our family is fortified throughout this time.

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